U.S. Health Literacy Timeline

1974

The term health literacy was first used in a paper entitled Health Education as Social Policy (Simonds, 1974) in reference to health education as a policy issue affecting the health care system, the education system, and mass communication. In this context health literacy was described as, “health education meeting minimal standards for all school grade levels.”

1985

Adult education specialists Cecilia (Ceci) and Leonard (Len) Doak and Jen Root further conceptualizes and expands upon the term health literacy in the classic textbook, Teaching Patients with Low Literacy Skills and suggests that health literacy be an independent research construct. Ceci and Len Doak are best known as the founders of the field of health literacy. Their original research collection is located at the National Libraries of Medicine’s History of Medicine Division.

1975-1994

86 Journal Articles on health literacy published in the United States.*

1994

Plain Language Action and Information Network (PLAIN), an unfunded working group of federal employees from different agencies and specialties who support the use of clear communication in government writing launched PlainLanguage.Gov (redesign occurred in 2004).

 

1995-1999

211 Journal Articles on health literacy published in the United States.*

1999

Health Literacy Awareness Month officiated in Chase’s Calendar of Events.

2000-2004

481 Journal Articles on health literacy published in the United States.*

2003

The Health Research and Services Administration (HRSA) authored a guidance document for healthcare organizations to help in development of a Notice of Privacy Practices in plain language, as mandated by the 1996 Health Insurance Portability and Accountability Act (HIPAA): Plain Language Principles and Thesaurus for Making Notice of Privacy Practices More Readable.

2004

2005-2010

2,079 Journal Articles on health literacy published in the United States.*

2010

2011

 The Centers for Disease Control and Prevention develops the CDC Health Literacy Action Plan.

2011-2016

 4,729 Journal Articles on health literacy published in the United States.*

2013

Koh, Brach, Harris, and Parchman (2013) develops Health Literate Care Model

2016

National Institutes of Health, Office of Disease Prevention and Health Promotion launches Health Literacy Online: A Guide for Simplifying the User Experience.

2017-2022

8,515 Journal Articles on health literacy published in the United States.*

2017

The U.S. Federal Drug Administration (FDA) releases its Strategic Plan for Risk Communication and Health Literacy (2017-2019), to “more effectively communicate the benefits and risks of FDA-regulated products.” Four outcomes of the Plan include (1) increased use of clear communication best practices and plain language in developing messages, (2) increased development of messages and communications specifically for target audiences, (3) improved efficiency of internal operations for writing and developing communications, and (4) improved dissemination of communications and information. Most notable, the Plan promotes research on health literacy and risk communication and the value of audience testing of messages.

2018

U.S. Common Rule revised, requiring health literacy in the elements of informed consent for the protection of human subjects in research.

2020

Healthy People 2030 redefines health literacy and adds six health literacy objectives.

2022

U.S. Department of Health and Human Services updates its Strategic Plan (2022-2026), adding Health Literacy and Plain Language Information Sharing as a cross-cutting principle, “Make it easier and less complex for individuals, families, and caregi

*Clarivate Web of ScienceTM portal search by keyword, year, and country of origin.

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